Sunday, February 21, 2010

New Profile after 4 Weeks!

We are now finished turning the screws!!!! ya :)
Our next Doc appointment is on the 3rd of March, hopefully only 3 more weeks after that.
Which means he might have this contraption taken off on the 24th of March.
We are praying!
Jett wants it off before his 10th birthday and that is on the 29th of March!
***
So far everything is going as planned.
Jett is still eating pretty good thanks to the baby grinder and his straws!!
His teacher has been great to work with.
She really wants Jett back in the classroom so we all thought really hard about how we could make it work, so now he will start going half a day 4 days a week.
We will drop him off after lunch and pick him up 5 minutes before they get out so that we beat the crowed halls.
I think this will be so good for him to get out of the house and see all of his friends.
We have noticed that he needs a lot more sleep and time to rest he crys out a lot at night so going to school after lunch will give him the time he needs to sleep in a bit.
We met with Doctor Morales on February 10th
while we were in Salt Lake Scott was able to get some Jazz tickets.
They all had a great time even though Jazz lost to the Lakers.
Jett's friend Drew was the only one with them that was happy about that.
-O- well you win some you lose some.

Monday, February 8, 2010

Lots to do!!

As you can probably tell I am playing catch up.
Its been a busy week!!
We have been noticing how much Jetts profile is changing.
It's amazing in just two weeks how different he looks!!!
Our biggest challenge is keeping Jett busy and his tummy full!!
We spend most of our time thinking of what to do or what to eat.
We just picked up a bunch of school work so hopefully it will keep him busy for a bit longer?
The baby grinder is still working great he was even able to eat his sisters
famous cinnamon rolls!
I think he ate 2 or 3 !!! Ya:)
***
Jett has said how bored he is too many times so I put him to work!!
ha ha :)
Mylee got her exercise barking at the vacuum
so it entertained them both for a couple of minutes.
Meet Gimpa and Slurp!!!

My Family all said that they would do anything to take some of Jetts pain...
Well my sister got a sick kid for a couple of days and the others were real naughty!
So when she said she had more than enough,
my dad decided to take some on, (not really) what he or any of us had in mind.
He cut all the way though the bone on his pointer finger with his dull band saw
and cut into the tendon on the middle finger.
Thanks to Doctor Nakken, he was able to reattach and sew the tendons back together.
Only time will tell how much movement he will get back.
I AM SO GRATEFUL FOR MY FAMILY AND FRIENDS!!!
Jett is doing so good I think he can do the rest all on his own!!
So no more hospital trips!!
( K)
GRATITUDE!!!


Jett's 3rd grade teacher made this quilt for him and had all his friends sign it!!!
He is so blessed to have such a great teacher and friends!
Thank you so much he loves the quilt and it's even Redman colors!! ya

Going to Salt Lake to see the doctor Jett wanted to watch a movie but of
course the head phones wouldn't fit the same.
Good thing nothing stops a determined kid.

Tuesday, February 2, 2010

One day at a time!

Yay we have a Winner!!
As you can imagine food is kinda blah if it has to go though a syringe so I was thinking (I know it doesn't happen much)lol When my kids were baby's I had a grinder that made it so they could eat what we were eating with out chewing!!! So tonight we tried it and he loved it we had fajitas and so did he!!! yay
For all you moms going though this it worked. It has been one week and he can open his mouth just enough to put the spoon in up side down and wipe the food on his tongue. We are still using a syringe to drink.

Jett is a crazy sleeper!!!!
He is to only sleep on his back but as you can see he is on side laying right on 3 screws. Scott woke up the other night and he was sleeping face down in the pillow. Scott freaked out and couldn't sleep for the rest of the night Jett couldn't understand why his dad keep waking him up till he woke up with a jaw ache!! (I think his auntie Au made those pillows way to cozy) Thanks Au we love you!!